Here is the latest;
Fever Sunday night admitted 4am Monday morning. Started on IV antibiotics. No fever for 24 hours...thought we were going home. Bad news, Tuesday morning, the blood culture came back positive for an infection. This is stressful due to the lack of an immune system to fight such infections.
Bad news, it is Strep. Better news, it is hopefully a strain that is very responsive to antibiotics. Bad news, we wait another 24 hours to see exactly what strain. Good news, no fever since Monday.
Bad news, his gums are swollen and thickening from one of the medications and it is difficult to eat. Good news, he likes soft foods? PCMC has daily mashed potatoes, fruit smoothies and jello with whipped cream!
Bad news, his kidneys are showing some signs of effects from the medication. Good news, that lab came back a little better today.
Good news, we can be discharged on home health and antibiotics hopefully Wednesday. Bad news, the lab result did not come back in time Wednesday afternoon to go home. Good news, hope for Thursday to go home.
Early morning bad news, the lab result was mistakenly contaminated and will have to process another 24 hours. Good news is after STRONGLY and KINDLY speaking with physicians that if possible to go home on the current antibiotic as long as he stays fever free, we could still go home Thursday.
Bad news, his platelets have once again dropped and he will need a transfusion before we go home. Good news, we can get the transfusion now in room and hopefully avoid a weekend ER trip.
Bad news, he will not be able to be there for yearbook signing. Good news, he has great friends that are having his friends sign it for him. Thanks. Good news, he has had wonderful teachers that have been working with us at home for the past 10 weeks and he WILL be able to go on to the ninth grade in Fall. Thank You.
Bad news, not being able to see Courtney graduate on Friday. Good news, hope that he will be home for her 18th birthday on Saturday...he loves that girl.
Good news is that he felt good enough yesterday to beat a volunteer(even one-eyed) at a few video racing games.
It is truly one of life's most challenging concepts to understand that we must endure the bad to fully appreciate the good. We continue to hold on to the hope that at the end of the day there are more good news moments than the bad.
Today, I linger at the poster in the hall...
[HOPE] is a powerful
medicine
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