Today's inspiration comes from an overheard conversation between a four year old patient and his mom. each time we enter the halls of the hospital there are numerous stories to be seen, heard or quietly observed. Today was no exception.
As he struggles to walk and keep up with his mom, as they walk down the hall, the boy with the walking aid states in a discouraged yet tender voice; "but mom, it's just too hard to keep walking." The mom simply replies; "but look at you bud, you are moving forward today and we are not going backwards, good job. I know it's hard, but it is so good to keep moving forward." The boy quickly says, "okay, I know!" and he continues down the hall!
This week has been one of moving forward, not necessarily as a whole but at least from the past few weeks and the most recent set back. It has been 15 days and counting since the last transfusion of blood or platelets. Yesterdays numbers were borderline, however, he felt like he could make it through the weekend. It amazes me just how in tune this boy is now with his body. He can for the most part feel and know when he is hitting low hemoglobin and or Hct as well as when the med toxicity begins to hit. The goal is to have as few transfusions as possible to allow for his body to begin producing the healthy cells on it's own and lower the risk of rejection if ever he has to have a non-related donor marrow transplant.
We smile as we overhear the tender conversation and move forward with our day.
Halloween was fairly regular. Besides 2 days of labs trips and one day of quick clinic, we have been home all week!
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| We had fun with family as we make a much needed outing together! |
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| Where is WALDO? I mean Ryan? |
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| We had a fun visit with great grandma Wintle! |
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| A 19 year-old-tradition of pumpkin carving! |
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Friends since high school!
You have both aged well the past |
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Gone are the puppy faces to carve,
the request was a spider |
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The carving has become quite artistic
over the years! |
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| FRANKENSTEIN!!!!! |
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| Cute Dorothy! |
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| CAMO! |
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| Fun painting pumpkins! Thanks Aunt MaKell! |
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Ben usually turns away from more photos,
however, for some reason, he was eager to
stand in the middle for this one at the school
Halloween Carnival! |
Courtney prepares to submit her missionary papers and they say we will know 10-17 days where she will be serving!!!! Courtney was so excited to have a FHE and share an article in the Ensign on how places are chosen for missionaries! It was a tender spirit as she focused on getting just the right candid snapshot that the brethren would look at and say, Hello, Sister Cox! Now where will you be serving the Lord?
A daughter is a miracle that never ceases to be miraculous...full of beauty and forever beautiful...loving and caring and truly amazing.
-- Deanna Beisser
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