Home again, home again, jiggity jig!

Each visit to the specialists and to draw labs is filled with the anticipation of staying in the hospital or coming back to monitor at home. Once again, labs went down slightly. They still remain within transfusion level, however, Davis is remaining stable(that is of course a relative term for all walks of life...emotional, financial, physical etc. etc. etc.) okay back to the matter at hand.

We had a little moment today to meet a girl that has acquired aplastic anemia within the past two years that was visiting the hospital for a check-up. The darling little 7 year old, was in awe at Davis' 6 foot frame sitting on the exam bed. The little girl did not say much, but the mom and I exchanged brief words and glances. I felt her spirit and we understood one another.

We are getting closer to a therapeutic level for the medication, and will retest on Friday. He is experiencing more side effects, especially in the night, from the meds now, however, continues to amaze me with his endurance and attitude.

The words to adequately describe this incredible boy is nothing short of
Christlike patience.

His calm, even in the waves of feeling ill, often leaves me speechless.

I feel his strength when he puts his arm over my shoulders for support as we go from lounge chair, to bed, to couch in attempts to find him comfort in the night.

I often wonder who is supporting whom.

I usually sit for a moment in the car before entering my house as if to gather enough stability and strength to fulfill all my roles that will inevitably swarm upon entering. A few rare times in the past, maybe after a lunch out with friends or a wonderfully relaxing massage, I have even considered pulling back out feeling as if my cup was not quite full enough to brave dinner, laundry, school work, or the dreaded 4:30- 6:30 time frame! My heart now, is again overwhelmed each time I pull in the drive way. This emotion is however, one of pure privilege at the many roles that await me behind the doors. Do not misunderstand ...I still say a prayer, take a deep cleansing breath and say out loud with a deep sense of gratitude...

...There's no place like home.