A Tuesday morning has never looked so bright. I woke up almost in disbelief after a restless night to a peaceful boy sleeping. Davis has made it through the entire holiday weekend at home. Labs drawn..results will determine the day. As we get to the end of each day and enter the night, I check and recheck that no complications are creeping in on us. Each day was filled with amazing highs and a few lows. He battled through the headaches and stomach issues to participate in as much "outside" happiness as possible. Our spirits are always lifted to spend time with friends and family. He did not have enough energy on Saturday morning to join on the float for the entire parade, however, met the officers and student body on the road for a quick photo and hello.
It was touching to sit at the parade and see the VW cars with the announcements of the benefit for Davis on their windows and sides. Special thanks to all those that have a hand in the planning. The excitement and love is contagious and offers hope. We are in awe and so amazed by the caring community in which we live.
The encouraging words as everyone saw that he was out and about brought that familiar Davis grin.
He was able to see the parade from the car and the fireworks from the park. Davis' mouth even felt good enough to enjoy the fourth of July food favorites and challenge Courtney to a contest to tie a cherry stem in a knot with his tongue! The victory being even sweeter knowing that as the meds are changed, his mouth will, once again, eventually lose such a talent. He gloated as he knotted stem after stem stopping at an all-time personal high of seven.
I started to cry when I saw all those VW's in the parade with the Distance for Davis signs.
ReplyDeleteYou guys are always in my thoughts and prayers.
xo
~Elisa