July 2012 - Today we laughed - DONE

Today Davis and I had a tough conversation about the unspoken possibility of going straight to a bone marrow transplant in the next few weeks instead of a second round of the ATG treatment like two years ago.  It is difficult to stop your mind from exploring all the avenues that you could be headed down.  From the very beginning we made the deal that we would keep our thoughts close to the current issues at hand and not dwell to much on the past nor look too far into the future.

Life does not consist mainly,

or even largely, of facts or happenings.

It consist mainly of the storm of thoughts

that is forever flowing through one's head.

- Mark Twain

 This thought process has truly helped us manage in the present.  Although starring at the face of two difficult treatments, he is feeling the ambiguity of something new and something pretty intense.  He matter of fact said, "so if I do have to do chemo and lose all these luscious locks (he says as he runs his hands through his hair), he stops, looks in the mirror, wow, if I have to shave my head , it would be pure white under there, blinding white! I would then have to go head tanning!" Heavenly Father, Thank you for this boys humor.  It is difficult to talk about a direction when we do not know.  I know the humor and mood will change a bit when it all starts taking place, but for today, we laughed.
 He continues to keep this positive attitude as he gets bursts of energy from some other source than his physical body.  Even after the 20 questions... all that have to take place before any activity, like; Do you have your emergency bracelet on? Is everyone healthy where you are going to hang out? What is the air quality outside today? Is the wind blowing?  Did you take your meds?  he sports a smile, checks them all off and goes about his day!  We are trying to compromise on projects to pass the slow times that are somewhere between puzzles and sanding the roof of his car.  He is currently working on constructing a volleyball net system that can go in the backyard.  Game on!

Sometimes your joy is the source of your smile, 

but sometimes your smile can be the source of your joy.

- Thich Nhat Hanh